Friday, April 10, 2009

I Scream

Happy Good Friday,

Got a nice mail from my brother who has two young sons Sam and Adam:-

This morning while I was getting ready Sam and Adam dashed into my room

Sam "Mummy there is a man talking on the radio about Down Syndrome Ireland"

Adam "it's been sponsored by HB Ice Cream!" I explained that Down Syndrome Ireland is a very large association that raises money all over Ireland to give support to children just like Ava.

Adam "We need to go and eat Ice Cream.... I think Ava would like that"

More information on the HB Ice Cream Sunday / Funday on the Down Syndrome Ireland website

Saturday, April 4, 2009

Happy Birthday Ava Bear. One Today!!! Go Shorty!

Haaaang on a Sec....

April 4th?......

It's My Birthday! Yaaaaaaaaaaaaaaaaaaaaaaaaaaaaaay!

My Ava Bear is one year old today and I just can't believe it. What a year it has been. Myself and my (unbelievably cool) wife Duffo are so proud of our beautiful daughter (I know sickly sweet). Duffo has done an amazing job and Ava is a credit to her. A lot of work has been put in there and it has all paid off. My girls are a great team.

DS or not I have to say having kids is awesome. Today is a good opportunity to reflect. What started with a tough beginning and initial 'shock' has been all good since. We have been blessed that no major health problems have arisen. We have met some really fab people through our new circles and have some great new friends. I see these friendships as being super important in the future. Special shout out to my fellow blogger friends / readers and to Duffo and Ava's mother weekly group.

Finally in what I think should be a last tip of the hat to this time last year, ICU etc etc I want to say thanks again to our families + friends (esp the parents) for all their help esp. Carol super sister (tm).

In at attempt to make this post somewhat useful (as opposed to 100% sickly sweet) here is some stuff we have learned since Ava was born which may or may not be of use.

- Yes she has DS but hey ho get over it and move on. It's tough at the start but no matter what just get on with it.
- Get involved, read, go to talks, read some more. Lots of good information out there.
- Get a nuk for your child with DS, they are superb trust me,
- Get a Honey Bear Straw Cup
- Do lots and lots of talking direct to your childs face from early on it pays back in spades
- Down Syndrome Forums are a great resource.
- Sing!

So thats it , what a year, cheesy celebration photos to follow no doubt.

PS Cathal get better soon!